Welcome to insideALS
At insideALS.com, you will find resources about genetic ALS that have been developed by Biogen in consultation with ALS specialists and patient advocacy groups for people living with ALS and their caregivers.
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No-charge genetic testing for people living with amyotrophic lateral sclerosis (ALS) and their families
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Sponsored by Biogen and offered through Invitae, a genetic testing provider, ALS Identified is a no-charge genetic testing program for ALS.
What is ALS?
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ALS is a rare, progressive, and fatal disease, which has traditionally been divided into two main groups—familial (fALS) and sporadic (sALS)—but recent discoveries have shed light on the role genetics may play in both.
How ALS is diagnosed
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A combination of a person’s family history, a physical exam, nerve tests, laboratory tests, and imaging techniques may be used to make an ALS diagnosis.
Inheritance risks
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After being diagnosed with ALS, you may consider whether your family is at risk. Genetic testing may help provide you and your family with more information about a possible genetic component to your ALS.
A profile of ALS
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Join Daniel Barvin—whose family is affected by genetic ALS—on his journey of discovery. Daniel describes how, after starting from a point of uncertainty, he progressed to knowledge and a better understanding of the disease.
Genetic ALS glossary
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There are many complex words and phrases used when it comes to ALS. Here you will find a glossary of terms that are commonly used to describe genetic ALS.